Personal Health Records

(bibliography last updated October 2008)

----------. "Importance of Personal Health Records (PHRs) Draws Support of American College of Physicians (ACP)." ACP, December 7, 2006. http://www.acponline.org/pressroom/phrs.htm

----------. “Microsoft Launches Health Records Site.” Advocate.com, October 4, 2007. http://www.advocate.com/news_detail_ektid49596.asp

----------. “New-age PHR comes with decision-support, multiple opportunities for DM.” Disease Management Advisor 12, no. 12 (December 2006): 140-2, 133. http://www.ncbi.nlm.nih.gov/pubmed/17225631

-------. “OptumHealth creates lifetime PHR.” Disease Management Advisor 14, no. 4 (April 2008): 5-6, 1.  http://www.ncbi.nlm.nih.gov/pubmed/18500161

----------. “Recordkeeping systems: personal health records.” Journal (American Medical Record Association) 55, no. 12 (December 1984): 42. http://www.ncbi.nlm.nih.gov/pubmed/10310901

----------. “Report on attitudes about personal health records.” Internet Healthc Strateg 6, no. 9 (September 2004): 10-1. http://www.ncbi.nlm.nih.gov/pubmed/15526437

Abidi, S. S., and A. Goh. “A personalised Healthcare Information Delivery System: pushing customised healthcare information over the WWW.” Stud Health Technol Inform 77 (2000): 663-7. http://www.ncbi.nlm.nih.gov/pubmed/11187636

Ackerman, Michael J. “The personal health record.” The Journal of Medical Practice Management: MPM 23, no. 2 (2007): 84-5. http://www.ncbi.nlm.nih.gov/pubmed/17974083

Agarwal, Ritu. “Patients' Perceived Value of Using a PHR” presented at the NCVHS Meeting, January 6, 2005. http://www.ncvhs.hhs.gov/050106p2.pdf

Agarwal, R., and C. M. Angst. “Technology-Enabled Transformations in US Health Care: Early Findings on Personal Health Records and Individual Use.” Human-Computer Interaction and Management Information Systems: Applications. Armonk, NY: ME Sharpe, Inc (2006). http://os.dhhs.gov/healthit/ahic/materials/meeting07/cemp/agaphrrepagisch.pdf

AHIMA e-HIM Personal Health Record Work Group. “Defining the personal health record. AHIMA releases definition, attributes of consumer health record.” J AHIMA 76, no. 6 (June 2005): 24-5.

AHIMA e-HIM Personal Health Record Work Group. “Practice brief. The role of the personal health record in the EHR.” J AHIMA 76, no. 7 (August 2005): 64A-64D.

AHIMA Personal Health Record Practice Council. “Defining the personal health information management role.” Journal of AHIMA / American Health Information Management Association 79, no. 6 (June 2008): 59-63.

AHIMA Personal Health Record Practice Council. “Helping Consumers Select PHRs: Questions and Considerations for Navigating an Emerging Market.” Journal of AHIMA 77, no. 10 (December 2006): 50-56.

AHIMA, and AMIA. “The value of personal health records. A joint position statement for consumers of healthcare.” J AHIMA 77, no. 9 (October 2006): 24.

AHIMA. “myPHR [web site].” http://www.myphr.com/

Albright, Brian. “Prepping for PHRs” Healthcare Informatics. February 2007. http://tinyurl.com/6atfwp

Altarum. Environmental Scan of the Personal Health Record (PHR) Market [draft]. Ann Arbor, MI, October 31, 2006. http://www.hhs.gov/healthit/ahic/materials/meeting11/ce/EnvScan_PHRmarket.pdf.

American College of Physicians. "Personal Health Record: Policy Statements Adopted by the American College of Physicians." ACP, March 2006. http://www.acponline.org/advocacy/where_we_stand/health_information_technology/phr.pdf.

AMIA. "The Transformative Potential of Integrated Personal Health Records [Discussion Draft]," September 2006. http://www2.amia.org/gotehr/docs/phrwhitepaperdraftvfinal.pdf.

Anderson, Howard J. “Managed Care Plans Push PHRs.” Health Data Management 15, no. 10 (October 2007). http://www.healthdatamanagement.com/html/current/CurrentIssueStory.cfm?articleId=15836

Angst, C. M., and R. Agarwal. “Cognitive Schemas and Electronic Personal Health Records: Making Sense of New IT in Health Care.” Center for Health Information and Decision Systems, University of Maryland (2006).

Angst, Corey M., Agarwal, Ritu, and Janelle Downing. An Empirical Examination of the Importance of Defining the PHR for Research and for Practice. Robert H. Smith School Research Paper, 2006. http://papers.ssrn.com/sol3/papers.cfm?abstract_id=904611

Angst, Cory M., and Ritu Agarwal. Getting Personal About Electronic Health Records: Modeling the Beliefs of Personal Health Record Users and Non-Users. Robert H. Smith School Research Paper, 2006. http://papers.ssrn.com/sol3/Delivery.cfm/SSRN_ID918810_code603680.pdf?abstractid=918810

Angst, Cory M., and Ritu Agarwal. Overcoming Personal Barriers to Adoption when Technology Enables Information to be Available to Others. Robert H. Smith School Research Paper, 2006. http://papers.ssrn.com/sol3/Delivery.cfm/SSRN_ID922075_code603680.pdf?abstractid=922075

Angst, Cory M., and Ritu Agarwal. Patients Take Control: Individual Empowerment with Personal Health Records. Robert H. Smith School Research Paper, 2006. http://papers.ssrn.com/sol3/Delivery.cfm/SSRN_ID904622_code603680.pdf?abstractid=904622

Angst, Wendy. “Privacy Safeguards in PHR Adoption.” Health Management Technology, April 2008. http://www.healthmgttech.com/features/2008_april/0408_thought_leaders.aspx

Ayana, M., P. Pound, F. Lampe, and S. Ebrahim. “Improving stroke patients' care: a patient held record is not enough.” BMC Health Serv Res 1, no. 1 (2001): 1. http://www.ncbi.nlm.nih.gov/pubmed/11257719

Ayana, M., P. Pound, F. Lampe, and S. Ebrahim. “The views of therapists on the use of a patient-held record in the care of stroke patients.” Clin Rehabil 12, no. 4 (August 1998): 328-37. http://www.ncbi.nlm.nih.gov/pubmed/9744668

Baker, D. B., and D. R. Masys. “PCASSO: a design for secure communication of personal health information via the internet.” Int J Med Inform 54, no. 2 (May 1999): 97-104. http://www.ncbi.nlm.nih.gov/pubmed/10219949

Ball, M. J., and J. Gold. “Banking on health: Personal records and information exchange.” J Healthc Inf Manag 20, no. 2 (Spring 2006): 71-83. http://www.ncbi.nlm.nih.gov/pubmed/16669591

Ball, Marion J, Carla Smith, and Richard S Bakalar. “Personal health records: empowering consumers.” Journal of healthcare information management : JHIM 21, no. 1 (2007): 76-86. http://www.ncbi.nlm.nih.gov/pubmed/17299929

Ball, Marion J, Melinda Y Costin, and Christoph Lehmann. “The personal health record: consumers banking on their health.” Studies in Health Technology and Informatics 134 (2008): 35-46. http://www.ncbi.nlm.nih.gov/pubmed/18376032

Baum, Brian. “Patients Will Drive Technology Adoption.” Health IT World, September 30, 2004. http://www.health-itworld.com/enews/09-30-2004_424.html?action=print

Benaroia, Mark, Roman Elinson, and Kelly Zarnke. “Patient-directed intelligent and interactive computer medical history-gathering systems: a utility and feasibility study in the emergency department.” International Journal of Medical Informatics 76, no. 4 (April 2007): 283-8. http://www.ncbi.nlm.nih.gov/pubmed/16473548

Benton Foundation. “Networking for Better Care: Health Care in the Information Age.” (1999). http://www.benton.org/publibrary/health/home.html

Berner, Eta S., Don E. Detmer, and Donald Simborg. “Will the Wave Finally Break? A Brief View of the Adoption of Electronic Medical Records in the United States.” J Am Med Inform Assoc 12, no. 1 (January 1, 2005): 3-7. http://www.jamia.org/cgi/content/abstract/12/1/3

Bernstein, William. “Jumpstarting access to personal information with rights-based legislation.” Journal of AHIMA / American Health Information Management Association 79, no. 7 (July 2008): 54-5, 61. http://www.ncbi.nlm.nih.gov/pubmed/18672728

Bhuyan, K. K. “Health promotion through self-care and community participation: elements of a proposed programme in the developing countries.” BMC Public Health 4, no. 1 (April 16, 2004): 11. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=15086956

Black, D. “Personal health records..” Journal of Medical Ethics 18, no. 1 (March 1992): 5–6. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=1573654

Blair, Robin. “Power to the people.” Health Management Technology 27, no. 11 (November 2006): 20, 22. http://www.ncbi.nlm.nih.gov/pubmed/17128737

Blanchet, Kevin D. “Electronic health records: are consumers riding or driving the car?” Telemedicine Journal and E-Health: The Official Journal of the American Telemedicine Association 14, no. 3 (April 2008): 210-4. http://www.ncbi.nlm.nih.gov/pubmed/18570543

Blechner, Barbara, and Adam Butera. “Health Insurance Portability and Accountability Act of 1996 (HIPAA): a provider's overview of new privacy regulations.” Connecticut Medicine 66, no. 2 (February 2002): 91-5. http://www.ncbi.nlm.nih.gov/pubmed/11908191

Blobel, B., and P. Pharow. “Patient data to go. Germany's national smart card project.” J AHIMA 76, no. 2 (February 2005): 48-51.

Blue Cross BlueShield Association. “Improving Health Care Through Personal Health Records.” Issue Brief, December 2006. http://www.ahip.org/content/fileviewer.aspx?docid=18328&linkid=156982

Bourgeois, Florence T, William W Simons, Karen Olson, John S Brownstein, and Kenneth D Mandl. “Evaluation of influenza prevention in the workplace using a personally controlled health record: randomized controlled trial.” Journal of Medical Internet Research 10, no. 1 (2008): e5. http://www.ncbi.nlm.nih.gov/pubmed/18343794

Brennan, Patricia Flatley. “Personal Health Records: an Overview.” http://healthsystems.engr.wisc.edu/papers_presentations/PHRs_An_Overview.ppt

Brennan, Patricia, and Kathy Hajopoulos. “Practical Solutions for Engaging Consumers in the Design and Use of PHRs: Beyond User Centered Design,” AHRQ, May 8, 2008. http://tinyurl.com/6xwono

Burgess, Mikhaila S.E., Omnia Allam, and W. Alex Gray. “Patient-Centred Approach to Focusing Online Health Information Search Results.” In Proceedings of the International Symposium on Electronic Personal Health Records 2006 (ISePHR 2006). Trondheim, Norway, 2006. http://ftp.informatik.rwth-aachen.de/Publications/CEUR-WS/Vol-219/paper02.pdf

Burrington-Brown, J. “Consumer empowerment.” J AHIMA 77, no. 3 (March 2006): 54.

Burrington-Brown, J. “Educating the public about personal health records.” J AHIMA 76, no. 9 (October 2005): 94-5.

Burrington-Brown, J. “The PHR effect.” J AHIMA 76, no. 2 (February 2005): 58-9.

Burrington-Brown, J. “The power of patient access.” J AHIMA 76, no. 5 (May 2005): 58-9.

Burton, Lynda C., Gerard F. Anderson, and Irvin W. Kues. “Using Electronic Health Records to Help Coordinate Care.” Milbank Quarterly 82, no. 3 (2004): 457-481. http://www.blackwell-synergy.com/links/doi/10.1111/j.0887-378X.2004.00318.x/abs

Campbell, R. J. “Getting to the good information. PHRs and consumer health informatics.” J AHIMA 76, no. 10 (December 2005): 46-9.

Certification Commission for Healthcare Information Technology (CCHIT). Personal Health Records PHR Work Group (2008). http://www.cchit.org/phr/

Chhanabhai, Prajesh, and Alec Holt. “Consumers are ready to accept the transition to online and electronic records if they can be assured of the security measures.” MedGenMed: Medscape General Medicine 9, no. 1 (2007): 8. http://www.ncbi.nlm.nih.gov/pubmed/17435617

Chin, T. “Personal health records could give doctors better access to a patient’s medical history.” American Medical News 48 (2005): 23-24. http://www.ama-assn.org/amednews/2005/05/09/bisa0509.htm

Choemprayong, Songphan, Sanghee Oh, and Laura Sheble. “Interfaces for the Personal Pregnancy Health Records (PregHeR) System: Facets in Time.” AMIA ... Annual Symposium proceedings / AMIA Symposium. AMIA Symposium (2006): 885. http://www.ncbi.nlm.nih.gov/pubmed/17238505

Church, Zach. “Personal health records latest concern for CIOs,” SearchCIO-Midmarket.com. April 15, 2008. http://searchcio-midmarket.techtarget.com/news/article/0,289142,sid183_gci1309717,00.html

Cimino, J J, et al. “An evaluation of patient access to their electronic medical records via the World Wide Web.” Proceedings / AMIA ... Annual Symposium. AMIA Symposium (2000): 151-5. http://www.amia.org/pubs/proceedings/symposia/2000/D200410.pdf

Cimino, J J, et al. The patient clinical information system (PatCIS): technical solutions for and experience with giving patients access to their electronic medical records.” International journal of medical informatics 68, no. 1-3 (December 18, 2002): 113-27.

Civan, Andrea, Meredith M. Skeels, Anna Stolyar, and Wanda Pratt. "Personal Health Information Management: Consumers' Perspectives." AMIA Annual Symposium Proceedings 2006 (2006): 156-160. http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1839450.

Clarke, J. L., D. C. Meiris, and D. B. Nash. “Electronic personal health records come of age.” Am J Med Qual 21, no. 3 Suppl (June 2006): 5S-15S. http://www.ncbi.nlm.nih.gov/pubmed/16621927

Conn, J. “Personal and (maybe) confidential. Questions over privacy, formats and definitions remain, but personal health records are on the way.” Mod Healthc 36, no. 27 (July 3, 2006): 28-31. http://www.ncbi.nlm.nih.gov/pubmed/16898550

Conn, Joseph, and Jennifer Lubell. “Boosting personal records. Blues, AHIP offer model health record for patient use.” Modern Healthcare 36, no. 50 (2006): 10. http://www.ncbi.nlm.nih.gov/pubmed/17212233

Connecting for Health. “Americans Want Benefits of Personal Health Records.” June 5, 2003. http://www.connectingforhealth.org/resources/phwg_survey_6.5.03.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: an Architecture for Consumer Participation. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CT7.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: Authentication of Consumers. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CT2.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: Chain-of-Trust Agreements. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CP4.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: Consumer Consent to Collections, Uses, and Disclosures of Information. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CP3.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: Consumer Obtainment and Control of Information. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CP8.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: Discrimination and Compelled Disclosures. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CP7.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: Dispute Resolution. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CP6.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: Enforcement of Policies. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CP9.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: Immutable Audit Trails. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CT3.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: Limitations on Identifying Information. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CT4.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: Notification of Misuse or Breach. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CP5.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: Overview and Principles. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/#guide

Connecting for Health. Common Framework for Networked Personal Health Information: Policy Notice to Consumers. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CP2.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: Policy Overview. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CP1.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: Portability of Information. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CT5.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: Security and System Requirements. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CT6.pdf

Connecting for Health. Common Framework for Networked Personal Health Information: Technology Overview. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/CT1.pdf

Connecting for Health. Connecting Americans to Their Health Care: a Common Framework for Networked Personal Health Information. New York: Markle Foundation, 2006. http://www.connectingforhealth.org/commonframework/docs/P9_NetworkedPHRs.pdf

Connecting for Health. Consumers as Network Participants. New York: Markle Foundation, 2008. http://www.connectingforhealth.org/phti/docs/ConsumerNetwork.pdf

Connecting for Health. “NCVHS Hearings on Personal Health Record,” January 5, 2005. http://www.ncvhs.hhs.gov/050105p1.pdf

Connecting for Health. Survey Finds Americans Want Electronic Personal Health Information to Improve Own Health Care. Markle Foundation, November 2006. http://www.markle.org/downloadable_assets/research_doc_120706.pdf

Connecting for Health. Working Group on Policies for Electronic Information Sharing Between Doctors and Patients. Connecting Americans to Their Healthcare: Final Report.  New York: Markle Foundation, 2004. http://www.connectingforhealth.org/resources/wg_eis_final_report_0704.pdf

Cornbleet, M. A., P. Campbell, S. Murray, M. Stevenson, and S. Bond. “Patient-held records in cancer and palliative care: a randomized, prospective trialt.” Palliat Med 16, no. 3 (May 2002): 205-12. http://www.ncbi.nlm.nih.gov/pubmed/12046996

Crawford, William. “Personally Controlled Health Records: the US Landscape and the Indivo Project.” In Proceedings of the International Symposium on Electronic Personal Health Records 2006 (ISePHR 2006). Trondheim, Norway, 2006. http://ftp.informatik.rwth-aachen.de/Publications/CEUR-WS/Vol-219/paper01.pdf

Cronin, Carol. Personal Health Records: an Overview of What is Available to the Public. Washington, D.C.: AARP Public Policy Institute, 2006. http://assets.aarp.org/rgcenter/health/2006_11_phr.pdf

Cross, M. “The patient as the record builder.” Health Data Management 7, no. 5 (May 1999): 84-6, 88. http://www.ncbi.nlm.nih.gov/pubmed/10387707

D'Alessandro, D M, and N P Dosa. “Empowering children and families with information technology.” Archives of pediatrics & adolescent medicine 155, no. 10 (October 2001): 1131-6. http://www.ncbi.nlm.nih.gov/pubmed/11576008

De Clercq, P A, A Hasman, and B H Wolffenbuttel. “Design of a consumer health record for supporting the patient-centered management of chronic diseases.” MEDINFO 10, no. Pt 2 (2001): 1445-9. http://www.ncbi.nlm.nih.gov/pubmed/11604965

De Clercq, Paul A, Arie Hasman, and Bruce H R Wolffenbuttel. “A consumer health record for supporting the patient-centered management of chronic diseases.” Medical Informatics and the Internet in Medicine 28, no. 2 (June 2003): 117-27. http://www.ncbi.nlm.nih.gov/pubmed/14692588

Denton, I. C. “Will patients use electronic personal health records? Responses from a real-life experience.” J Healthc Inf Manag 15, no. 3 (Fall 2001): 251-9. http://www.ncbi.nlm.nih.gov/pubmed/11642143

Detmer, D. “Current Status on E-Health and Personal Health Records: European v. North American Perspectives.” In University of Edinburgh, Clinical and Community Health Sciences Seminar Series Jan, 19, 2005.

Detmer, Don, Meryl Bloomrosen, Brian Raymond, and Paul Tang. “Integrated personal health records: Transformative tools for consumer-centric care.” BMC Medical Informatics and Decision Making 8, no. 1 (October 6, 2008): 45. http://www.ncbi.nlm.nih.gov/pubmed/18837999

Detmer, Don. “Building the national health information infrastructure for personal health, health care services, public health, and research.” BMC Medical Informatics and Decision Making 3, no. 1 (2003): 1. http://www.biomedcentral.com/1472-6947/3/1

Detmer, Don. Learning from Abroad: Lessons and Questions on Personal Health Records for National Policy. Washington, D.C.: AARP Public Policy Institute, 2006. http://www.aarp.org/research/health/healthliteracy/2006_10_phr_abroad.html

Dimick, Chris. “The great PHRontier. Private business stakes a claim in personal health records.” Journal of AHIMA / American Health Information Management Association 79, no. 6 (June 2008): 25-8.

Dimick, Chris. “Openness, not privacy. Web site promotes sharing disease successes, hardships.” Journal of AHIMA / American Health Information Management Association 79, no. 6 (June 2008): 30.

Dolan, Pamela Lewis. “PHR: Pretty Half-hearted Reception,” American Medical News, December 3, 2007. http://www.ama-assn.org/amednews/2007/12/03/bisa1203.htm

Dorr, David A, et al. “Informatics systems to promote improved care for chronic illness: A literature review.” J Am Med Inform Assoc (January 9, 2007). http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=17213491

Dorr, David A, et al. “Physicians' attitudes regarding patient access to electronic medical records.” AMIA ... Annual Symposium proceedings / AMIA Symposium. (2003): 832. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=14728337

Dumitru, R. C., W. Richter, T. Ganslandt, F. Ückert, and H. U. Prokosch. “Web-based Personal Consumer Health Records: overview and a pilot evaluation study.” Journal for quality of life research 2, no. 1 (2004): 44-47. http://www.imi.med.uni-erlangen.de/team/dumitru_ross_prokosch_2005.pdf

Earnest, Mark A, Stephen E Ross, Loretta Wittevrongel, Laurie A Moore, and Chen-Tan Lin. “Use of a patient-accessible electronic medical record in a practice for congestive heart failure: patient and physician experiences.” Journal of the American Medical Informatics Association : JAMIA 11, no. 5:410-7. http://www.ncbi.nlm.nih.gov/pubmed/15187074

Edlin, Mari. “Implementing personal health records.” AHIP Coverage 47, no. 2:14-6, 19. http://www.ncbi.nlm.nih.gov/pubmed/16700448

Eklund, Benny, and Ingrid Joustra-Enquist. “Sustains--direct access for the patient to the medical record over the Internet.” Studies in Health Technology and Informatics 100 (2004): 182-9. http://www.ncbi.nlm.nih.gov/pubmed/15718578

Endsley, S., D. C. Kibbe, A. Linares, and K. Colorafi. “An introduction to personal health records.” Fam Pract Manag 13, no. 5 (May 2006): 57-62. http://www.aafp.org/fpm/20060500/57anin.html

Fahrenholz, Cheryl Gregg, and Stacie L Buck. “PHRs and physician practices.” Journal of AHIMA / American Health Information Management Association 78, no. 4 (April 2007): 71-5.

Falcão-Reis, Filipa, Altamiro Costa-Pereira, and Manuel E Correia. “Access and privacy rights using web security standards to increase patient empowerment.” Studies in Health Technology and Informatics 137 (2008): 275-85. http://www.ncbi.nlm.nih.gov/pubmed/18560089.

Ferreira, Ana, Ana Correia, Ana Silva, Ana Corte, Ana Pinto, Ana Saavedra, et al. “Why facilitate patient access to medical records.” Studies in Health Technology and Informatics 127 (2007): 77-90. http://www.ncbi.nlm.nih.gov/pubmed/17901601

Fisher, Brian, Richard Fitton, Charline Poirier, and David Stables. “Patient record access--the time has come.” Studies in Health Technology and Informatics 121 (2006): 162-7. http://www.ncbi.nlm.nih.gov/pubmed/17095813

Fox, Leslie Ann. Health Record Paradigm Shift: Consumer Health Informatics Status in the United States. Washington, D.C.: IFHRO Conference, AHIMA Convention, 2004.

Foxhall, Kathryn. “Now it's personal. Personal health records may be next on deck for the certification process.” Healthcare Informatics: The Business Magazine for Information and Communication Systems 24, no. 3 (March 2007): 30. http://www.ncbi.nlm.nih.gov/pubmed/17427793

Friedman, B. “Health records get personal: a technology outlook for consumer access to personal health information.” J AHIMA 76, no. 1 (January 2005): 42-5.

Friedman, Beth. “Consumer-based records create HIM opportunity.” Journal of AHIMA / American Health Information Management Association 74, no. 8 (September 2003): 68-70. http://www.ncbi.nlm.nih.gov/pubmed/14515525

Galloway, G. “Getting personal. The personal health record is a key element in attaining the complete patient medical record.” Healthc Inform 23, no. 11 (November 2006): 45-6. http://www.ncbi.nlm.nih.gov/pubmed/17144335

Gearon, Christopher J. Perspectives on the Future of Personal Health Records. iHealth Reports. California Healthcare Foundation, June 2007. http://www.chcf.org/documents/chronicdisease/PHRPerspectives.pdf

Gerber, Michael S. “New Ways To Manage Health Data.” The Washington Post, March 11, 2008, sec. HE. http://www.washingtonpost.com/wp-dyn/content/article/2008/03/10/AR2008031001613.html

Ghez, M., A. Venot, J. Bouaud, J. Charlet, B. Seroussi, P. Zweigenbaum, et al. “Design of a Knowledge-structured Personal Health Record for Application in Preventive Care for the Elderly.” Medinfo 2004, no. CD (2004): 1613. http://cmbi.bjmu.edu.cn/news/report/2004/medinfo2004/pdffiles/papers/115_d040004746.pdf

Girion, Lisa. “Prognosis is dicey for new Microsoft health record site - Los Angeles Times.” Los Angeles Times, October 5, 2007, sec. Internet. http://tinyurl.com/5mdo2r.

Gladwin, Jacqul. “'Giving patients open access to medical records would help nurses improve care'.” Nursing Times 103, no. 25 (2007): 14. http://www.ncbi.nlm.nih.gov/pubmed/17649761

Goethals, Colleen. “HIM service with a smile.” Journal of AHIMA / American Health Information Management Association 76, no. 10 (2005): 54.

Goldman, Janlori. “Personal Health Records: Employers Proceed with Caution.” California HealthCare Foundation, January 2007.   http://www.chcf.org/documents/ihealth/PersonalHealthRecordsIB.pdf

Grandinetti, D. “Who'd have thought it? Patients are putting their records online.” Medical Economics 77, no. 7 (April 10, 2000): 93, 97-100, 105 passim. http://www.ncbi.nlm.nih.gov/pubmed/11010303

Grant, Richard W, Jonathan S Wald, Eric G Poon, Jeffrey L Schnipper, Tejal K Gandhi, Lynn A Volk, et al. “Design and implementation of a web-based patient portal linked to an ambulatory care electronic health record: patient gateway for diabetes collaborative care.” Diabetes Technology & Therapeutics 8, no. 5 (October 2006): 576-86. http://www.ncbi.nlm.nih.gov/pubmed/17037972

Grant, Richard W, Jonathan S Wald, Jeffrey L Schnipper, Tejal K Gandhi, Eric G Poon, E John Orav, et al. “Practice-linked online personal health records for type 2 diabetes mellitus: a randomized controlled trial.” Archives of Internal Medicine 168, no. 16 (September 8, 2008): 1776-82. http://www.ncbi.nlm.nih.gov/pubmed/18779465

Greenes, R. A., and N. M. Lorenzi. “Audacious goals for health and biomedical informatics in the new millennium.” J Am Med Inform Assoc 5, no. 5 (October 1998): 395-400. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=9760385

Gunter, T. D., and N. P. Terry. “The emergence of national electronic health record architectures in the United States and Australia: models, costs, and questions.” J Med Internet Res 7, no. 1 (2005): e3. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=15829475

Hagland, M. “Getting more personal.” J AHIMA 72, no. 8 (September 2001): 32-6.

Hagland, M. “Online Consumer Health Records: Revolution or Confusion?Journal of AHIMA 71, no. 3 (March 2000): 28-32.

Hagland, M. “Patient to partner. Will PHRs change the physician-patient relationship?” J AHIMA 76, no. 10 (December 2005): 38-40.

Halamka, John D, Kenneth D Mandl, and Paul C Tang. “Early experiences with personal health records.” Journal of the American Medical Informatics Association: JAMIA 15, no. 1 (2008): 1-7. http://www.ncbi.nlm.nih.gov/pubmed/17947615

Hampshire, A. J., M. E. Blair, N. S. Crown, A. J. Avery, and E. I. Williams. “Variation in how mothers, health visitors and general practitioners use the personal child health record.” Child Care Health Dev 30, no. 4 (July 2004): 307-16. http://www.ncbi.nlm.nih.gov/pubmed/15191420

Harman, L. B. “HIPAA: a few years later.” Online J Issues Nurs 10, no. 2 (May 31, 2005): 3. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=15977976.

Harris Interactive. “Two in Five Adults Keep Personal or Family Health Records and Almost Everybody Thinks This Is a Good Idea.” Health Care News, August 10, 2004. http://www.harrisinteractive.com/news/newsletters/healthnews/HI_HealthCareNews2004Vol4_Iss13.pdf

Harris Poll. “Many U.S. Adults are Satisfied with Use of Their Personal Health Information.” HarrisInteractive, March 26, 2007. http://www.harrisinteractive.com/harris_poll/index.asp?PID=743

Harrison, J., and N. Booth. “Applying new thinking from the linked and emerging fields of digital identity and privacy to information governance in health informatics.” Inform Prim Care 11, no. 4 (2003): 223-8. http://www.ncbi.nlm.nih.gov/pubmed/14980062

Hassol, Andrea, James M. Walker, David Kidder, Kim Rokita, David Young, Steven Pierdon, et al. “Patient Experiences and Attitudes about Access to a Patient Electronic Health Care Record and Linked Web Messaging.” J Am Med Inform Assoc 11, no. 6 (2004): 505-513. http://www.jamia.org/cgi/content/abstract/11/6/505

Health Industry Insights. “Consumers Reveal Personal Health Records (PHRs) Are Barely on Their Radar,” May 26, 2006. http://www.healthindustry-insights.com/HII/getdoc.jsp?containerId=prUS20185506

Hede, Karyn. “Portable electronic medical records are closer to reality, but not without hitches.” Journal of the National Cancer Institute 99, no. 4 (February 21, 2007): 268-9. http://www.ncbi.nlm.nih.gov/pubmed/17312301

Hermansen-Kobulnicky, C. J., J. B. Wiederholt, and B. Chewning. “Adverse effect monitoring: opportunity for patient care and pharmacy practice.” J Am Pharm Assoc (Wash DC) 44, no. 1 (February 2004): 75-86. http://www.ncbi.nlm.nih.gov/pubmed/14965157?dopt=Citation

Heubusch, Kevin. “IT standards for PHRs. Are PHRs ready for standards? Are standards ready for PHRs?.” Journal of AHIMA / American Health Information Management Association 79, no. 6 (June 2008): 31-6.

Heubusch, Kevin. “PHRs for the masses? Consumers say they are interested in PHRs, but will they use them?.” Journal of AHIMA / American Health Information Management Association 78, no. 4 (April 2007): 34, 36.

Heubusch, Kevin. “Piecing together the PHR.” Journal of AHIMA / American Health Information Management Association 78, no. 4 (April 2007): 28-32.

Hicks, J. “Advocating for the PHR: educator's work sets stage for the future.” J AHIMA 76, no. 10 (December 2005): 88.

Holland, Marc. Electronic Personal Health Records: a Survey of Consumer Attitudes and Usage. Framington, MA: Health Industry Insights, May 2006. http://www.idc.com/downloads/HIIConsumersurveyePHRs_Q&A.pdf

Honeyman, Alasdair, Benita Cox, and Brian Fisher. “Potential impacts of patient access to their electronic care records.” Informatics in primary care 13, no. 1 (2005): 55-60. http://www.ncbi.nlm.nih.gov/pubmed/15949176

Huang, Xiaoli. “Personal Health Record (PHR) Keeping,” 2004. http://www.cs.umd.edu/hcil/iHealth/phr.pdf

Iakovidis, I. “From electronic medical record to personal health record.” Stud Health Technol Inform 43 Pt B (1997): 915-22. http://www.ncbi.nlm.nih.gov/pubmed/10179802?dopt=Citation

Iakovidis, I. “From electronic medical record to personal health records: present situation and trends in European Union in the area of electronic healthcare records.” Stud Health Technol Inform 52, Pt 1 (1998): suppl 18-22. http://www.ncbi.nlm.nih.gov/pubmed/10384547?dopt=Citation

Iakovidis, I. “Towards personal health record: current situation, obstacles and trends in implementation of electronic healthcare record in Europe.” Int J Med Inform 52, no. 1-3 (December 1998): 105-15. http://www.ncbi.nlm.nih.gov/pubmed/9848407?dopt=Citation

Ishikawa, Kiyomu, and et al. “The guideline of the personal health data structure to secure safety healthcare. The balance between use and protection to satisfy the patients' needs.” International Journal of Medical Informatics 76, no. 5-6 (2007): 412-8. http://www.ncbi.nlm.nih.gov/pubmed/17224303

Jacobs, Ellen B. “Practice Toolkit: Occupational Health.” Journal of AHIMA 76, no. 8 (September 2005): 63,65.

Jacobs, Ellen B. “The HIM role in the PHR. Patient-centered care through patient-centered information.” Journal of AHIMA / American Health Information Management Association 78, no. 4 (April 2007): 38.

Jeffs, D., and M. Harris. “The personal health record. Making it work better for general practitioners.” Aust Fam Physician 22, no. 8 (August 1993): 1417-9, 1421, 1424-7. http://www.ncbi.nlm.nih.gov/pubmed/8379881?dopt=Citation

Jeffs, D., V. Nossar, F. Bailey, W. Smith, and T. Chey. “Retention and use of personal health records: a population-based study.” J Paediatr Child Health 30, no. 3 (June 1994): 248-52. http://www.ncbi.nlm.nih.gov/pubmed/8074911?dopt=Citation

Jensen, Torstein, Knut Halvor Larsen, and Anders Kofod-Petersen. “Towards a Norwegian Implementation of Electronic Personal Health Records.” In Proceedings of the International Symposium on Electronic Personal Health Records 2006 (ISePHR 2006). Trondheim, Norway, 2006. http://ftp.informatik.rwth-aachen.de/Publications/CEUR-WS/Vol-219/paper05.pdf

Johnson, S., and P. Mayor. “A patient-held record for cancer patients from diagnosis onwards.” Int J Palliat Nurs 8, no. 4 (April 2002): 182, 184-9. http://www.ncbi.nlm.nih.gov/pubmed/12048447?dopt=Citation

Johnston, Douglas, David Kaelber, Eric C Pan, Davis Bu, Sapna Shah, Julie M Hook, et al. “A framework and approach for assessing the value of personal health records (PHRs).” AMIA ... Annual Symposium Proceedings / AMIA Symposium. AMIA Symposium (2007): 374-8. http://www.ncbi.nlm.nih.gov/pubmed/18693861

Jones, R., J. McConville, D. Mason, L. Macpherson, L. Naven, J. McEwen, et al. “Attitudes towards, and utility of, an integrated medical-dental patient-held record in primary care.” Br J Gen Pract 49, no. 442 (May 1999): 368-73. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=10736887

Jones, TM. “Patient participation in EHR benefits.” Health Manag Technol 24, no. 10 (October 2003): 64, 63. http://www.ncbi.nlm.nih.gov/pubmed/14535127?dopt=Citation

Joshi, P., K. V. Jones, R. M. Hanson, G. Alperstein, and B. Fasher. “Personal health records.” J Paediatr Child Health 29, no. 5 (October 1993): 400-1. http://www.ncbi.nlm.nih.gov/pubmed/8240876?dopt=Citation

Jossi, F. “Personal health records.” Healthc Inform 23, no. 2 (February 2006): 52, 54. http://www.ncbi.nlm.nih.gov/pubmed/16597007?dopt=Citation

Joustra-Enquist, I., and B. Eklund. “SUSTAINS - Direct Access for the Patient to the Medical Record Over the Internet.” Medinfo 2004, no. CD (2004): 1673. http://books.google.com/books?hl=en&lr=&id=oEE-45obxQ8C&oi=fnd&pg=PA182

Kaelber, David C, Ashish K Jha, Douglas Johnston, Blackford Middleton, and David W Bates. “A Research Agenda for Personal Health Records (PHRs).” Journal of the American Medical Informatics Association: JAMIA (August 28, 2008). http://www.ncbi.nlm.nih.gov/pubmed/18756002

Kaiser Permanente Institute for Health Policy. "Realizing the Transformative Potential of Personal Health Records." In Focus, no. 1 (April 2007). http://www.kpihp.org/publications/docs/phr_infocus.pdf.

Kanaan, Susan, Suzie Burke-Bebee, and Helga E. Rippen. Consumer Control of Electronic Personal Health Information: What Does It Mean? Why Is It Important? Washington, D.C.: ASPE, HHS. http://aspe.hhs.gov/sp/07/consumer/index.htm

Karat, Clare-Marie, Carolyn Brodie, and John Karat. “Usable privacy and security for personal information management.” Commun. ACM 49, no. 1 (2006): 56-57. http://tinyurl.com/6mwmjo  

Kardas, Geylani, and E Turhan Tunali. “Design and implementation of a smart card based healthcare information system.” Computer methods and programs in biomedicine 81, no. 1 (January 2006): 66-78. http://www.ncbi.nlm.nih.gov/pubmed/16356586

Kennedy, Patrick, and Dave Reichert. “Personal health records would empower patients, boost care quality, reduce costs.” The Hill, March 27, 2007. http://tinyurl.com/5vetgu

Kidd, Michael R. “Personal electronic health records: MySpace or HealthSpace?.” BMJ 336, no. 7652 (2008): 1029-1030. http://www.bmj.com/cgi/content/extract/336/7652/1029

Kim, E., A. Mayani, S. Modi, Y. Kim, and C.B. Soh. “Evaluation of Patient-Centered Electronic Health Record to Overcome Digital Divide.” In Engineering in Medicine and Biology Society, 2005. IEEE-EMBS 2005. 27th Annual International Conference of the, 1091-1094, 2005. http://ieeexplore.ieee.org/Xplore/login.jsp?url=/iel5/10755/33900/01616609.pdf?arnumber=1616609

Kim, Eung-Hun , Maisie Wang, Christopher Lau, and Yongmin Kim. "Application and Evaluation of Personal Health Information Management System." In Engineering in Medicine and Biology Society, 2004. IEMBS '04. 26th Annual International Conference of the IEEE, 2:3159-3162, 2004. http://ieeexplore.ieee.org/xpl/freeabs_all.jsp?tp=&arnumber=1403891&isnumber=30463.

Kim, M. I., and K. B. Johnson. “Patient entry of information: evaluation of user interfaces.” J Med Internet Res 6, no. 2 (May 14, 2004): e13. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=15249262

Kim, M. I., and K. B. Johnson. “Personal Health Records: Evaluation of Functionality and Utility.” J Am Med Inform Assoc 9, no. 2 (2002): 171-180. http://www.jamia.org/cgi/content/abstract/9/2/171

Kimmel, Z., R. A. Greenes, and E. Liederman. “Personal health records.” J Med Pract Manage 21, no. 3 (December 2005): 147-52. http://www.ncbi.nlm.nih.gov/pubmed/16471387?dopt=Citation

Klein-Fedyshin, M. S. “Consumer Health Informatics--integrating patients, providers, and professionals online.” Med Ref Serv Q 21, no. 3 (Fall 2002): 35-50. http://www.ncbi.nlm.nih.gov/pubmed/12238015?dopt=Citation

Kloss, Linda. “Greater Urgency, Sharper Focus for PHRs.” Journal of AHIMA 76, no. 10 (December 2005): 27. 

Kloss, Linda. “Personal Health Information: Reframing the Dialogue.” Journal of AHIMA 78, no. 4 (April 2007): 27.

Knowles, R., M. Blackburn, M. Zahir, M. Russell, A. Carrier, E. Nevrkla, et al. “The implementation of a new parallel child health record.” Child Care Health Dev 25, no. 4 (July 1999): 253-66. http://www.ncbi.nlm.nih.gov/pubmed/10399031?dopt=Citation

Koonce, Taneya Y., Dario A. Giuse, Julie M. Beauregard, and Nunzia Bettinsoli Giuse. “Toward a more informed patient: bridging health care information through an interactive communication portal.” Journal of the Medical Library Association 95, no. 1 (January 2007): 77–81. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=17252070

Krohn, Rick. “The consumer-centric personal health record--it's time.” Journal of Healthcare Information Management: JHIM 21, no. 1 (2007): 20-3. http://www.ncbi.nlm.nih.gov/pubmed/17299921

Kuhnel, E., G. Klepser, and R. Engelbrecht. “Smart cards and their opportunities for controlling health information systems.” Int J Biomed Comput 35 Suppl (February 1994): 153-7. http://www.ncbi.nlm.nih.gov/pubmed/8188409?dopt=Citation

Lafky, Deborah Beranek, Bengisu Tulu, and Thomas A. Horan. “Information Systems and Health Care X: A User-driven approach to personal health records.” Communications of the Association for Information Systems 17 (2006). http://aisel.aisnet.org/cais/vol17/iss1/46/

Landro, Laura. “Your Medical History on a Microchip: Having Key Data Ready in an Emergency.” Wall Street Journal Online, July 27, 2004. http://webreprints.djreprints.com/1037170017656.html

Lansky, D, S Kanaan, and J Lemieux. Identifying Appropriate Federal Roles in the Development of Electronic Personal Health Records, 2005. http://odphp.osophs.dhhs.gov/projects/PHRecords/default.htm

Lansky, D. “Overview of Personal Health Records” presented at the Markle Foundation Connecting for Health, May 26, 2005. http://www.ahqa.org/pub/uploads/Day_2_Track_6_Lansky.ppt

Lansky, D., J. Wald, and P. Flatley Brennan. “Overview of Personal Health Records.” National Health Information Infrastructure Panel Discussion (2004).

Lansky, David, and John Halamka. “Personal Health Records: an overview,” AHRQ, March 5, 2008. http://tinyurl.com/3ahxxp

Laugen, Frode. “Development of a Computerized Tool for Self-Assessment of Subjective Symptoms that can be Integrated in a Personal Health Record.” In Proceedings of the International Symposium on Electronic Personal Health Records 2006 (ISePHR 2006). Trondheim, Norway, 2006. http://ftp.informatik.rwth-aachen.de/Publications/CEUR-WS/Vol-219/paper04.pdf

Lecker, Robert, et al. “Review of the Personal Health Record (PHR) Service Provider Market: Privacy and Security.” January 5, 2007. http://www.hhs.gov/healthit/ahic/materials/01_07/ce/PrivacyReview.pdf.

Lee, M., C. Delaney, and S. Moorhead. “Building a personal health record from nursing perspective.” Stud Health Technol Inform 122 (2006): 25-9. http://www.ncbi.nlm.nih.gov/pubmed/17102211?dopt=Citation

Lewis, Morgan. “PHRs are coming: Is your practice ready?.” Medical Economics, September 5, 2008. http://medicaleconomics.modernmedicine.com/PHRdoc.

Liaw, S. T. “Patient and general practitioner perceptions of patient-held health records.” Fam Pract 10, no. 4 (December 1993): 406-15. http://www.ncbi.nlm.nih.gov/pubmed/8168677?dopt=Citation

Liaw, S. T. “The effect of a computer-generated patient-held medical record summary and/or a written personal health record on patients' attitudes, knowledge and behaviour concerning health promotion.” Fam Pract 13, no. 3 (June 1996): 289-93. http://fampra.oxfordjournals.org/cgi/reprint/13/3/289

Liaw, S. T. “The impact of a computer generated patient held health record.” Aust Fam Physician 27 Suppl 1 (January 1998): S39-43. http://www.ncbi.nlm.nih.gov/pubmed/9503735?dopt=Citation

Liaw, S.T. “Patient Informatics and Patient-held Health Records (PHR).” In HIC 95: It's Time for Healthcare. Proceedings of the 3rd National Health Informatics Conference. Adelaide, Australia, 1995. http://search.informit.com.au/documentSummary;dn=025601109721932;res=E-LIBRARY

Lin, Chen-Tan, et al. “An Internet-based patient-provider communication system: randomized controlled trial.” Journal of medical Internet research 7, no. 4 (2005): e47. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=16236699

Lipman, Marvin M. “Office Visit: Take Control of Your Medical Records.” Consumer Reports on Health 17, no. 2 (2005): 11. http://www.consumerreports.org/oh/resources/freepdfs/sample.pdf

Lober, William B, Brenda Zierler, Anne L Herbaugh, Sally E Shinstrom, Anna Stolyar, Eung-Hun Kim, et al. “Barriers to the use of a Personal Health Record by an Elderly Population.” AMIA ... Annual Symposium proceedings / AMIA Symposium. AMIA Symposium (2006): 514-8. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=17238394

Lohr, S. “Microsoft Rolls Out Personal Health Records.” New York Times, October 4, 2007. http://www.nytimes.com/2007/10/04/technology/04nd-soft.html

Lohr, Steve. “Google Health Begins Its Preseason at Cleveland Clinic” Bits - Technology - New York Times Blog, February 21, 2008. http://bits.blogs.nytimes.com/2008/02/21/google-health-begins-its-preseason-at-cleveland-clinic/?ref=technology

Lowes, R. “Personal health records: What's the status now?” Med Econ 83, no. 4 (February 17, 2006): TCP13-4, TCP16. http://www.ncbi.nlm.nih.gov/pubmed/16573223?dopt=Citation

Lowes, Robert. “Will this new initiative catch on?.” Medical Economics 82, no. 13 (July 8, 2005): 24, 28. http://www.ncbi.nlm.nih.gov/pubmed/16161831

Lubell, Jennifer. “Employers drive personal records. Large firms unveil system that gives consumers control.” Modern Healthcare 36, no. 49 (December 11, 2006): 8-9. http://www.ncbi.nlm.nih.gov/pubmed/17212215

Luo, JS. "Personal health records." Primary psychiatry 13, no. 4 (2006): 19-21. http://www.primarypsychiatry.com/aspx/articledetail.aspx?articleid=334

Mandl, Kenneth D, William W Simons, William C R Crawford, and Jonathan M Abbett. “Indivo: a personally controlled health record for health information exchange and communication.” BMC Medical Informatics and Decision Making 7 (2007): 25. http://www.ncbi.nlm.nih.gov/pubmed/17850667

Manos, Diana. “Research teams unveil 'next-generation' personal health records.” Healthcare IT News, September 19, 2008. http://www.healthcareitnews.com/story.cms?id=9996

Markle Foundation. “Attitudes of Americans Regarding Personal Health Records and Nationwide Electronic Health Information Exchange.” October 2005. http://www.phrconference.org/assets/research_release_101105.pdf

Markle Foundation. “Connecting Americans to Their Health Care: Empowered Consumers, Personal Health Records and Emerging Technologies.” December 7, 2006. http://www.phrconference.org/agenda.php

Markle Foundation. “Connecting Americans to Their Health Care: Empowered Consumers, Personal Health Records and Emerging Technologies. Latest Research,” December 7, 2006. http://www.phrconference.org/conf_resources/presentations/dec8/latest_research.pdf

Marshall, P. “Personal Health Records: Their Benefits and the Role of Standards” (2004). http://aspe.hhs.gov/sp/nhii/Agenda/Presentations/020724p5.pdf

Masys, Daniel, Dixie Baker, Amy Butros, and Kevin E Cowles. “Giving patients access to their medical records via the internet: the PCASSO experience.” Journal of the American Medical Informatics Association : JAMIA 9, no. 2:181-91. http://www.ncbi.nlm.nih.gov/pubmed/11861633

Miller, Holly. “PHRs raise many issues.” Health Data Management 16, no. 8 (August 2008): 64. http://www.ncbi.nlm.nih.gov/pubmed/18717136

Miller, K., and M. Barker. “An evaluation of the use of personal health records.” Report by the Personal Health Record Committee to the Royal Australian College of General Practitioners (1978).

Miller, S A. “A trial of parent held child health records in the armed forces..” BMJ : British Medical Journal 300, no. 6731 (April 21, 1990): 1046. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=2344515

Moen, A., and P. F. Brennan. “Health@Home: the work of health information management in the household (HIMH): implications for consumer health informatics (CHI) innovations.” J Am Med Inform Assoc 12, no. 6 (December 2005): 648-56. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=16049230

Mon, Donald T. “Data synch. Aligning US data exchange initiatives.” Journal of AHIMA / American Health Information Management Association 75, no. 5 (May 2004): 50-2.

Mon, D. T. “PHR and EHR: what's the difference? Records differ in span and legality.” J AHIMA 76, no. 10 (December 2005): 60-1. //xpedio/groups/secure/documents/ahima/bok1_028589.hcsp

Mon, Donald T. “Standards harmony. Establishing common standards is key to the success of the NHII.” Journal of AHIMA / American Health Information Management Association 75, no. 6 (June 2004): 50-1.

Morales Rodriguez, Margarita, Gail Casper, and Patricia Flatley Brennan. “Patient-centered design. The potential of user-centered design in personal health records.” Journal of AHIMA / American Health Information Management Association 78, no. 4 (April 2007): 44-6.

Moreno, Lorenzo, and et al. Personal Health Records: What Do Underserved Consumers Want? Issue Brief. Masthematica Policy Research, Inc., May 2007. http://www.mathematica-mpr.com/publications/pdfs/phrissuebr.pdf

Morrissey, J. “But what does the public think? For consumers to adopt PHRs, they need reasons that hit home.” J AHIMA 76, no. 10 (December 2005): 42-4.

Mueller, Irene L E, Mary Teslow, and Ann Hallyburton. “A public life. Developing a consumer information role in HIM.” Journal of AHIMA / American Health Information Management Association 78, no. 4 (April 2007): 40-3.

Naik, A. D., D. Schulman-Green, R. McCorkle, E. H. Bradley, and S. T. Bogardus. “Will older persons and their clinicians use a shared decision-making instrument?.” J Gen Intern Med 20, no. 7 (July 2005): 640-3. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=16050860

Neame, R. “Creating an infrastructure for the productive sharing of clinical information.” Top Health Inf Manage 20, no. 3 (February 2000): 85-91. http://www.ncbi.nlm.nih.gov/pubmed/10747439?dopt=Citation

Nelson, Roxanne. “The personal health record.” The American Journal of Nursing 107, no. 9 (September 2007): 27-8. http://www.ncbi.nlm.nih.gov/pubmed/17721144

Nobel, J. J. “Health plan sponsored personal health records: a tool for information driven quality improvement.” AHIP Cover 46, no. 6 (December 2005): 14-6, 18, 20-5. http://www.ncbi.nlm.nih.gov/pubmed/16450491?dopt=Citation

Norgall, T., B. Blobel, and P. Pharow. “Personal health--the future care paradigm.” Stud Health Technol Inform 121 (2006): 299-306. http://www.ncbi.nlm.nih.gov/pubmed/17095828?dopt=Citation

Odom-Wesley, Barbara. “Envisioning the Personal Medical Record.” Journal of AHIMA 71, no. 10 (December 2000): 39-45.

Odom-Wesley, Barbara. “Using the Delphi Technique to Develop a Model for Family Medical Records.” Educational Perspectives (AOE).

O'Flaherty, S., E. Jandera, J. Llewellyn, and M. Wall. “Personal health records: an evaluation.” Arch Dis Child 62, no. 11 (November 1987): 1152-5. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=3688919

Østerlund, Carsten S, Nienke P Dosa, and Catherine Arnott Smith. “Mother knows best: medical record management for patients with spina bifida during the transition from pediatric to adult care.” AMIA ... Annual Symposium proceedings / AMIA Symposium. (2005): 580-4. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=16779106

Pagliari, Claudia, Don Detmer, and Peter Singleton. “Potential of electronic personal health records.” BMJ  335, no. 7615 (August 18, 2007): 330-333. http://www.bmj.com/cgi/content/full/335/7615/330

Pavlopoulos, S., A. Prentza, E. Kyriacou, S. Marinos, A. Stasis, D. Kalivas, et al. “Mobile Medical Data (MOMEDA)--a Personalized Medical Information System.” Stud Health Technol Inform 72 (2000): 125-32. http://www.ncbi.nlm.nih.gov/pubmed/11010324?dopt=Citation

Peterson, Ron. “myHealthFolders.” Journal of AHIMA 77, no. 9 (October 2006): 97,99.

Pharow, P., and B. Blobel. “Security infrastructure requirements for electronic health cards communication.” Stud Health Technol Inform 116 (2005): 403-8. http://www.ncbi.nlm.nih.gov/pubmed/16160291?dopt=Citation

Pharow, Peter, Bernd Blobel, and Claudia Hildebrand. “How can the German Electronic Health Card support patient's role in care management.” Studies in Health Technology and Informatics 137 (2008): 386-401. http://www.ncbi.nlm.nih.gov/pubmed/18560101

Pope, J. “Implementing EHRs requires a shift in thinking. PHRs--the building blocks of EHRs--may be the quickest path to the fulfillment of disease management.” Health Manag Technol 27, no. 6 (June 2006): 24, 26, 120. http://www.ncbi.nlm.nih.gov/pubmed/16796228?dopt=Citation

Popovich, Michael L, Jeffery J Aramini, and Michael Garcia. “Immunizations: the first step in a personal health record to empower patients.” Studies in Health Technology and Informatics 137 (2008): 286-95. http://www.ncbi.nlm.nih.gov/pubmed/18560090

Pratt, Wanda, Kenton Unruh, Andrea Civan, and Meredith M. Skeels. “Personal health information management.” Commun. ACM 49, no. 1 (2006): 51-55. http://portal.acm.org/citation.cfm?id=1107490

Pringle, M. “Improving quality: bridging the health sector divide.” Int J Qual Health Care 15, no. 6 (December 2003): 457-62. http://intqhc.oxfordjournals.org/cgi/content/full/15/6/457

Protti, D., and C. Eggert. Personal health records and sharing patient information. World View Reports, July 13, 2005. http://www.connectingforhealth.nhs.uk/newsroom/worldview/protti7

Pyper, Cecilia, Justin Amery, Marion Watson, and Claire Crook. “Access to electronic health records in primary care-a survey of patients' views.” Medical science monitor : international medical journal of experimental and clinical research 10, no. 11 (November 2004): SR17-22. http://www.ncbi.nlm.nih.gov/pubmed/15507869

Pyper, Cecilia, Justin Amery, Marion Watson, and Claire Crook. “Patients' experiences when accessing their on-line electronic patient records in primary care.” The British journal of general practice : the journal of the Royal College of General Practitioners 54, no. 498 (January 2004): 38-43. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=14965405

Quantin, Catherine, Maniane Fassa, Gouenou Coatrieux, Vincent Breton, Jean Yves Boire, and François André Allaert. “Giving patients secure Google-like access to their medical record.” Studies in Health Technology and Informatics 137 (2008): 61-7. http://www.ncbi.nlm.nih.gov/pubmed/18560069

Raisinghani, Mahesh S, and Erika Young. “Personal health records: key adoption issues and implications for management.” International Journal of Electronic Healthcare 4, no. 1 (2008): 67-77. http://www.ncbi.nlm.nih.gov/pubmed/18583296

Ralston, James D, David Carrell, Robert Reid, Melissa Anderson, Maureena Moran, and James Hereford. “Patient web services integrated with a shared medical record: patient use and satisfaction.” Journal of the American Medical Informatics Association: JAMIA 14, no. 6 (2007): 798-806. http://www.ncbi.nlm.nih.gov/pubmed/17712090

Ralston, James D, Debra Revere, Lynne S Robins, and Harold I Goldberg. “Patients' experience with a diabetes support programme based on an interactive electronic medical record: qualitative study.” BMJ (Clinical research ed.) 328, no. 7449 (May 15, 2004): 1159. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=15142919

Ralston, James D, James Hereford, and David Carrell. “Use and satisfaction of a patient Web portal with a shared medical record between patients and providers.” AMIA ... Annual Symposium Proceedings / AMIA Symposium. AMIA Symposium (2006): 1070. http://www.ncbi.nlm.nih.gov/pubmed/17238689

Rampell, Catherine. “Your Health Data, Plugged In to the Web.” The Washington Post. http://www.washingtonpost.com/wp-dyn/content/article/2007/10/04/AR2007100400984.html

Randeree, Ebrahim, and Melinda Whetstone. "Personal Health Records: Patients in Control." In Patient-Centered E-Health. Idea Group, Inc., 2009. http://books.google.com/books?hl=en&lr=&id=sxBi8IvTBw4C&oi=fnd&pg=PA47.

Raths, D. “Gateway to success. With consumers becoming more responsible for their healthcare choices, portals can help separate tech-savvy providers and payers from the competition.” Healthc Inform 23, no. 4 (April 2006): 30-2, 34, 36. http://www.ncbi.nlm.nih.gov/pubmed/16676640?dopt=Citation

Raths, David. “Banking on patient control. Advocates of health record banks are moving the industry away from distributed HIE models.” Healthcare Informatics: The Business Magazine for Information and Communication Systems 25, no. 6 (June 2008): 105-6. http://www.ncbi.nlm.nih.gov/pubmed/18589552

Reinke, Tom. “Rise of the PHR.” Managed Care (Langhorne, Pa.) 16, no. 1 (January 2007): 40-2. http://www.ncbi.nlm.nih.gov/pubmed/17285811

Rhoads, J., and J. Metzger. “Personal health records: prospects and challenges for health plans.” AHIP Cover 48, no. 1 (2007): 50-53. http://www.ncbi.nlm.nih.gov/pubmed/17315559

Riva, A., K. D. Mandl, D. H. Oh, D. J. Nigrin, A. Butte, P. Szolovits, et al. “The personal internetworked notary and guardian.” Int J Med Inform 62, no. 1 (June 2001): 27-40. http://www.ncbi.nlm.nih.gov/pubmed/11340004?dopt=Citation

Robert Wood Johnson Foundation. “Design Teams Unveil Innovative PHR Applications that Help People Take Charge of Their Health - RWJF,” September 17, 2008. http://www.rwjf.org/pioneer/product.jsp?id=34528

Robert Wood Johnson Foundation. "Expert Teams to Design New Solutions for Personal Health Records to Help Consumers Manage Their Health - RWJF," December 7, 2006. http://www.rwjf.org/newsroom/newsreleasesdetail.jsp?productid=21905.

Robeznieks, Andis.“Medicare to test PHRs. CMS will try 18-month pilot of Net-based records.” Modern Healthcare 37, no. 26 (June 25, 2007): 45. http://www.ncbi.nlm.nih.gov/pubmed/17622046

Robeznieks, Andis. “Getting personal. Legal liability, patient-data overload among issues making physicians uneasy over emergence of personal health records.” Modern Healthcare 37, no. 21 (May 21, 2007): 40-2. http://www.ncbi.nlm.nih.gov/pubmed/17824189

Rocha, Roberto A, Alfred N Romeo, and Chuck Norlin. “Core features of a parent-controlled pediatric medical home record.” Studies in Health Technology and Informatics 129, no. Pt 2 (2007): 997-1001. http://www.ncbi.nlm.nih.gov/pubmed/17911865

Rode, Dan. “PHR debates. The personal record gets political, but there is danger in rushing legislation.” Journal of AHIMA / American Health Information Management Association 79, no. 6 (June 2008): 18, 20.

Rode, Dan. “PHRs a Work in Progess: Industry Offers a Wealth of Models, but Standards and Education Still Needed.” Journal of AHIMA / American Health Information Management Association 78, no. 5 (May 2007): 18, 20.

Roop, Liz. “Technology. Big business charges ahead with personal health records.” Hospitals & Health Networks / AHA 81, no. 2 (February 2007): 17. http://www.ncbi.nlm.nih.gov/pubmed/17373527

Ross, Stephen E, and Chen-Tan Lin. “A randomized controlled trial of a patient-accessible electronic medical record.” AMIA ... Annual Symposium proceedings / AMIA Symposium. (2003): 990. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=14728493

Ross, Stephen E, and Chen-Tan Lin.“The effects of promoting patient access to medical records: a review.” Journal of the American Medical Informatics Association : JAMIA 10, no. 2:129-38. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=12595402

Ross, Stephen E, et al. “Expectations of patients and physicians regarding patient-accessible medical records.” Journal of medical Internet research 7, no. 2 (2005): e13. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=15914460

Ross, Stephen E, et al. “Providing a web-based online medical record with electronic communication capabilities to patients with congestive heart failure: randomized trial.” Journal of medical Internet research 6, no. 2 (May 14, 2004): e12. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=15249261

Rossetti, Diana. “Keeping Your Own Health Records can Improve the Quality of Your Care.” Bend Weekly News, March 30, 2007. http://www.bendweekly.com/news/4081.html

Rubel, P., and et al. “Toward personal eHealth in cardiology. Results from the EPI-MEDICS telemedicine project.” J Electrocardiol 38, no. 4 Suppl (October 2005): 100-6. http://www.ncbi.nlm.nih.gov/pubmed/16226083?dopt=Citation

Ruland, Cornelia M, Haakon Brynhi, Roar Andersen, and Tore Bryhni. “Developing a shared electronic health record for patients and clinicians.” Studies in Health Technology and Informatics 136 (2008): 57-62. http://www.ncbi.nlm.nih.gov/pubmed/18487708

Ruotsalainen, Pekka, Anna-Kaisa Iivari, and Persephone Doupi. “Finland's strategy and implementation of citizens' access to health information.” Studies in Health Technology and Informatics 137 (2008): 379-85. http://www.ncbi.nlm.nih.gov/pubmed/18560100  

Saffin, K., and A. Macfarlane. “How well are parent held records kept and completed?” The British Journal of General Practice 41, no. 347 (June 1991): 249–251. http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1371589

Sax, Ulrich, Isaac Kohane, and Kenneth D Mandl. “Wireless technology infrastructures for authentication of patients: PKI that rings.” Journal of the American Medical Informatics Association : JAMIA 12, no. 3:263-8. http://www.ncbi.nlm.nih.gov/pubmed/15684133

Schneider, J. H. “Online personal medical records: are they reliable for acute/critical care?” Crit Care Med 29, no. 8 Suppl (August 2001): N196-201. http://www.ncbi.nlm.nih.gov/pubmed/11496043?dopt=Citation

Seidman, Joshua, and Ted Eytan. Helping Patients Plug In: Lessons in the Adoption of Online Consumer Tools. California Healthcare Foundation, June 2008. http://www.chcf.org/documents/chronicdisease/HelpingPatientsPlugIn.pdf

Sembritzki, Juergen. Use and Development of Health Cards in Europe. IFHRO Conference, AHIMA Convention, 2004.

Shaw, Elizabeth, Michelle Howard, David Chan, Heather Waters, Janusz Kaczorowski, David Price, et al. “Access to web-based personalized antenatal health records for pregnant women: a randomized controlled trial.” Journal of Obstetrics and Gynaecology Canada: JOGC = Journal D'obstétrique Et Gynécologie Du Canada: JOGC 30, no. 1 (January 2008): 38-43. http://www.ncbi.nlm.nih.gov/pubmed/18198066

Simons, William W., John D. Halamka, Isaac S. Kohane, Daniel Nigrin, Nathan Finstein, and Kenneth D. Mandl. "Integration of the Personally Controlled Electronic Medical Record into a Regional and Data Exchange: A National Demonstration." AMIA Annual Symposium Proceedings 2006 (2006): 1099. http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1839527.

Simons, William W., Kenneth D. Mandl, and Isaac S. Kohane. “The PING Personally Controlled Electronic Medical Record System: Technical Architecture.” J Am Med Inform Assoc (2004): M1592. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=15492031

Siteman, Elizabeth, Alexandra Businger, Tejal Gandhi, Richard Grant, Eric Poon, Jeffrey Schnipper, et al. “Clinicians recognize value of patient review of their electronic health record data.” AMIA ... Annual Symposium Proceedings / AMIA Symposium. AMIA Symposium (2006): 1101. http://www.ncbi.nlm.nih.gov/pubmed/17238720

Sittig, Dean F. “Personal health records on the internet: a snapshot of the pioneers at the end of the 20th Century.” International Journal of Medical Informatics 65, no. 1 (2002): 1-6. http://www.sciencedirect.com/science/article/B6T7S-45BDB6B-1/2/efc3fc4e0af227bae7548da7b3c90fe0

Slack, Warner V., Deborah Lewis, Gunther Eysenbach, Rita Kukafka, P. Zoe Stavri, Holly Jimison, et al. Consumer Health Informatics: Informing Consumers and Improving Health Care. Springer, 2005. http://tinyurl.com/5hbdzt

Slaughter, L., C. Ruland, and A. K. Rotegard. “Mapping cancer patients' symptoms to UMLS concepts.” AMIA Annu Symp Proc (2005): 699-703. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=16779130

Smith, C. P. “Helping consumers manage their PHRs.” J AHIMA 77, no. 3 (March 2006): 50-1, 53; quiz 57-8.

Solovy, Alden. “Should the patient be at the controls?.” Hospitals & Health Networks / AHA 79, no. 6 (June 2005): suppl 11 following 70. http://www.ncbi.nlm.nih.gov/pubmed/16047631

Sprague, Lisa. Personal Health Records: the People's Choice?. National Health Policy Forum, George Washington University, 2006. http://www.nhpf.org/pdfs_ib/IB820_PHRs_11-30-06.pdf

Srinivasan, A. “Keeping online personal records private: security and privacy considerations for Web-based PHR systems.” J AHIMA 77, no. 1 (January 2006): 62-3, 68.

Staroselsky, Maria, Lynn A Volk, Ruslana Tsurikova, Lisa Pizziferri, Margaret Lippincott, Jonathan Wald, et al. “Improving electronic health record (EHR) accuracy and increasing compliance with health maintenance clinical guidelines through patient access and input.” International journal of medical informatics 75, no. 10-11:693-700. http://www.ncbi.nlm.nih.gov/pubmed/16338169

Stead, William W. “Rethinking electronic health records to better achieve quality and safety goals.” Annual Review of Medicine 58 (2007): 35-47. http://www.ncbi.nlm.nih.gov/pubmed/16987082

Steinbrook, Robert. “Personally Controlled Online Health Data -- The Next Big Thing in Medical Care?.” N Engl J Med 358, no. 16 (2008): 1653-1656. http://content.nejm.org/cgi/content/extract/358/16/1653

Sun, K. “Development of a Model and Comparison of Personal Health Record and Related Health Sites.” Informatics Review (2001). http://www.informatics-review.com/thoughts/ksun.html

Tang, P. C., and D. Lansky. “The missing link: bridging the patient-provider health information gap.” Health Aff (Millwood) 24, no. 5 (October 2005): 1290-5. http://www.ncbi.nlm.nih.gov/pubmed/16162575?dopt=Citation

Tang, P. C., J. S. Ash, D. W. Bates, J. M. Overhage, and D. Z. Sands. “Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption.” J Am Med Inform Assoc 13, no. 2 (April 2006): 121-6. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=16357345

Taylor, Roger, Anthony Bower, Federico Girosi, James Bigelow, Kateryna Fonkych, and Richard Hillestad. “Promoting Health Information Technology: Is There A Case For More-Aggressive Government Action?.” Health Aff 24, no. 5 (2005): 1234-1245. http://content.healthaffairs.org/cgi/content/abstract/24/5/1234

Teevan, Jaime, William Jones, and Benjamin B. Bederson. “Introduction. Special Issue: Personal information Management.” Commun. ACM 49, no. 1 (2006): 40-43. http://tinyurl.com/5ausmu

Thielst, Christina Beach. “The new frontier of electronic, personal, and virtual health records.” Journal of Healthcare Management / American College of Healthcare Executives 52, no. 2 (2007): 75-8. http://www.ncbi.nlm.nih.gov/pubmed/17447534

Tobacman, J. K., and P. Nolan.“Utilization of a personal health record in a general medicine clinic.” J Gen Intern Med 11, no. 6 (June 1996): 370-2. http://www.ncbi.nlm.nih.gov/pubmed/8803745?dopt=Citation

Tobacman, J. K., et al. “Implementation of personal health records by case managers in a VAMC general medicine clinic.” Patient Educ Couns 54, no. 1 (July 2004): 27-33. http://www.ncbi.nlm.nih.gov/pubmed/15210257?dopt=Citation

Tran, D T, X Zhang, A Stolyar, and W B Lober. “Patient-centered design for a personal health record system.” AMIA ... Annual Symposium proceedings / AMIA Symposium. AMIA Symposium (2005): 1140. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=16779426

Tsai, C C, and J Starren. “Patient participation in electronic medical records.” JAMA: The Journal of the American Medical Association 285, no. 13 (April 4, 2001): 1765. http://www.ncbi.nlm.nih.gov/pubmed/11673099

Tuil, Wouter S, Chris M Verhaak, Didi D M Braat, Pieter F de Vries Robbé, and Jan A M Kremer. “Empowering patients undergoing in vitro fertilization by providing Internet access to medical data.” Fertility and Sterility 88, no. 2 (August 2007): 361-8. http://www.ncbi.nlm.nih.gov/pubmed/17416366

Turk, V., and S. Burchell. “Developing and Evaluating Personal Health Records for Adults with Learning Disabilities.” Tizard Learning Disability Review 8, no. 4 (2003): 33-41.

U.S. Dept. of Health and Human Services, Centers for Medicare & Medicaid Services. “Summary of Responses to an Industry RFI Regarding a Role for CMS with Personal Health Records,” 2005. http://www.cms.hhs.gov/PerHealthRecords/Downloads/SummaryofPersonalHealthRecord.pdf

U.S. National Committee for Vital and Health Statistics. Letter/Report regarding Personal Health Records to Secretary of Health and Human Services Michael Leavitt. Washington, D.C.: U.S. DHHS, 2005. http://www.ncvhs.hhs.gov/050909lt.htm

U.S. National Committee for Vital and Health Statistics. Personal Health Records and Personal Health Record Systems. Washington, D.C.: U.S. DHHS, 2006. http://www.ncvhs.hhs.gov/0602nhiirpt.pdf

U.S. Office of Technology Assessment. “Bringing Health Care Online: The Role of Information Technologies.” US Government Printing Office, Washington, D.C (1995). http://www.wws.princeton.edu/ota/disk1/1995/9507/950704.PDF

Ueckert, Frank, Michael Goerz, Maximilian Ataian, Sven Tessmann, and Hans-Ulrich Prokosch. “Empowerment of patients and communication with health care professionals through an electronic health record.” International journal of medical informatics 70, no. 2-3 (July 2003): 99-108. http://www.ncbi.nlm.nih.gov/pubmed/12909161

Valen, Jakob. “Personal Electronic Record Systems in Psychiatric Care: Assessment, Treatment Matching, Quality Assurance, and Research.” In Proceedings of the International Symposium on Electronic Personal Health Records 2006 (ISePHR 2006). Trondheim, Norway, 2006. http://ftp.informatik.rwth-aachen.de/Publications/CEUR-WS/Vol-219/paper03.pdf

Van Beusekom, Mary. “The future is in the cards. Building continues on the foundation Peter Velez has formed for patient-controlled medical records.” Healthcare Informatics: The Business Magazine for Information and Communication Systems 22, no. 2 (February 2005): 70, 72. http://www.ncbi.nlm.nih.gov/pubmed/15759775

van't Riet, A, M Berg, F Hiddema, and K Sol. “Meeting patients' needs with patient information systems: potential benefits of qualitative research methods.” International Journal of Medical Informatics 64, no. 1 (November 2001): 1-14. http://www.ncbi.nlm.nih.gov/pubmed/11673099  

Vaz, I. “Personal health record for school children with multiple needs.” Child Care Health Dev 21, no. 3 (May 1995): 191-7; discussion 198. http://www.ncbi.nlm.nih.gov/pubmed/7621558?dopt=Citation

Versel, Neil. “Patient histories: how computers help.” Medical Economics 81, no. 9 (May 7, 2004): TCP15-8. http://www.ncbi.nlm.nih.gov/pubmed/15164639

Volk, Lynn A, Lisa Pizziferri, Jonathan Wald, and David W Bates. “Patients' perceptions of a Web portal offering clinic messaging and personal health information.” AMIA ... Annual Symposium Proceedings / AMIA Symposium. AMIA Symposium (2005): 1147. http://www.ncbi.nlm.nih.gov/pubmed/16779433

Volkmer, R. E., M. A. Gouldstone, and C. P. Ninnes. “Parental perception of the use and usefulness of a parent-held child health record.” J Paediatr Child Health 29, no. 2 (April 1993): 150-3. http://www.ncbi.nlm.nih.gov/pubmed/8489797?dopt=Citation

Waegemann, C. P. “Closer to reality. Personal health records represent a step in the right direction for interoperability of healthcare IT systems and accessibility of patient data.” Health Manag Technol 26, no. 5 (May 2005): 16, 18. http://www.ncbi.nlm.nih.gov/pubmed/15932068?dopt=Citation

Wald, Jonathan, and Kenneth Mandl. “Personal Health Records: Personal Control of Health Data and Patient-Provider Communications,” AHRQ, April 3, 2008. http://tinyurl.com/5vhuwq

Wald, Jonathan S, Karen Burk, Kate Gardner, Raisa Feygin, Elizabeth Nelson, Marianna Epstein, et al. “Sharing electronic laboratory results in a patient portal--a feasibility pilot.” Studies in Health Technology and Informatics 129, no. Pt 1 (2007): 18-22. http://www.ncbi.nlm.nih.gov/pubmed/17911670

Walton, Suzanne, Helen Bedford, and Carol Dezateux. “Use of personal child health records in the UK: findings from the millennium cohort study.” BMJ (Clinical research ed.) 332, no. 7536 (February 4, 2006): 269-70. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=16455721

Wang, M., C. Lau, F. A. Matsen, and Y. Kim. “Personal health information management system and its application in referral management.” IEEE Trans Inf Technol Biomed 8, no. 3 (September 2004): 287-97. http://www.ncbi.nlm.nih.gov/pubmed/15484434?dopt=Citation

Wang, Maisie, Christopher Lau, Frederick A. Matsen, and Yongmin Kim. "Patient-Centered Health Record Linked to a Referral Service." s.l.: n.d. http://depts.washington.edu/pettt/papers/Referrals.pdf.

Weingart, Saul N, David Rind, Zachary Tofias, and Daniel Z Sands. “Who uses the patient internet portal? The PatientSite experience.” Journal of the American Medical Informatics Association : JAMIA 13, no. 1:91-5. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=16221943

Williams, B. T., H. Imrey, and R. G. Williams. “The lifespan personal health record.” Med Decis Making 11, no. 4 Suppl (December 1991): S74-6. http://www.ncbi.nlm.nih.gov/pubmed/1770854?dopt=Citation

Win, K. T. “Web-based personal health record systems evaluation.” International Journal of Healthcare Technology and Management 7, no. 3 (2006): 208-217. http://www.inderscience.com/search/index.php?action=record&rec_id=8432&prevQuery=&ps=10&m=or

Win, Khin Than, Willy Susilo, and Yi Mu. “Personal health record systems and their security protection.” Journal of medical systems 30, no. 4 (August 2006): 309-15. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=16978011

Winkelman, Warren J, and Kevin J Leonard.“Overcoming Structural Constraints to Patient Utilization of Electronic Medical Records: A Critical Review and Proposal for an Evaluation Framework.” J Am Med Inform Assoc 11, no. 2 (2004): 151-161. http://www.jamia.org/cgi/content/abstract/11/2/151

Winkelman, Warren J, Kevin J Leonard, and Peter G Rossos. “Patient-perceived usefulness of online electronic medical records: employing grounded theory in the development of information and communication technologies for use by patients living with chronic illness.” Journal of the American Medical Informatics Association : JAMIA 12, no. 3:306-14. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=15684128

Wolter, Julie. “Health record banking. An emerging PHR model.” Journal of AHIMA / American Health Information Management Association 78, no. 9 (October 2007): 82-3.

Wolter, J., and B. Friedman. “Health records for the people. Touting the benefits of the consumer-based personal health record.” J AHIMA 76, no. 10 (December 2005): 28-32.

Wolter, J., and J. Donnelly. PHR in the City: a New HIM Role. Washington, D.C.: IFHRO Congress & AHIMA Convention Proceedings, 2004.

Wright, A., and D. F. Sittig. “Security threat posed by USB-based personal health records..” Ann Intern Med 146, no. 4 (2007): 314-5. http://www.ncbi.nlm.nih.gov/pubmed/17310061

Wright, Adam, and Dean F Sittig. “Encryption characteristics of two USB-based personal health record devices.” Journal of the American Medical Informatics Association: JAMIA 14, no. 4 (2007): 397-9. http://www.ncbi.nlm.nih.gov/pubmed/17460132

Wright, Adam, and Dean F. Sittig. “Clinical Observations on Personal Health Records.” Constructive Medicine 2.0, December 17, 2007. http://open.medicdrive.org/blog/2007/12/17/clinical-observations-on-personal-health-records/

Wright, C M, and L Reynolds. “How widely are personal child health records used and are they effective health education tools? A comparison of two records.” Child: care, health and development 32, no. 1 (January 2006): 55-61. http://www.ncbi.nlm.nih.gov/pubmed/16398791?dopt=Abstract

Wuerdeman, L., L. Volk, L. Pizziferri, R. Tsurikova, C. Harris, R. Feygin, et al. “How accurate is information that patients contribute to their Electronic Health Record?” AMIA Annu Symp Proc (2005): 834-8. http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=16779157

Young, S., and M. Fasher. “An observational study of the NSW parent-held record in a GP setting.” Aust Fam Physician 23, no. 4 (April 1994): 704-5, 708-12. http://www.ncbi.nlm.nih.gov/pubmed/8198492?dopt=Citation

Zhou, Yi Y, Terhilda Garrido, Homer L Chin, Andrew M Wiesenthal, and Louise L Liang. “Patient access to an electronic health record with secure messaging: impact on primary care utilization.” The American Journal of Managed Care 13, no. 7 (July 2007): 418-24. http://www.ncbi.nlm.nih.gov/pubmed/17620037

Zickmund, Susan L, Rachel Hess, Cindy L Bryce, Kathleen McTigue, Ellen Olshansky, Katharine Fitzgerald, et al. “Interest in the use of computerized patient portals: role of the provider-patient relationship.” Journal of General Internal Medicine: Official Journal of the Society for Research and Education in Primary Care Internal Medicine 23 Suppl 1 (January 2008): 20-6. http://www.ncbi.nlm.nih.gov/pubmed/18095039

Zieger, Anne. “Privacy should be #1 PHR priority, CCHIT committee says .” FierceHealthIT, July 27, 2008. http://www.fiercehealthit.com/story/privacy-should-be-1-phr-priority-cchit-committee-says/2008-07-27